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Patient burden
To reduce this burden, we suggest that additional sessions should
not be planned just for data gathering, independent of clinical
activity--whether experimental or usual care, but that data be gathered
as much as possible during regularly scheduled clinical treatment
sessions and that measures be organized according to those that
can be completed by the subject at other times, such as at home
and returned by mail--the latter applies particularly to baseline
and follow up questionnaire data. It is strongly recommended that
most questionnaire and interview data collections done in the clinic
be limited to 30 minutes of patient time; baseline and final follow
up assessments may be longer but only after careful explanation
to the patient. In our experience, baseline questionnaires requiring
more than 45-60 minutes to complete will most likely not be successful.
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