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Finally,
investigators may desire, in some studies, to assess domains other
than symptom status, health-related quality of life, psychological
distress, and symptom-specific expectations. Although beyond the
scope of this chapter, a few examples include:
- Satisfaction
with care. There are generic satisfaction
measures, one of the most popular being the 9-item Medical Outcomes
Study measure developed by RAND (Rubin
et al.,1993). A more symptom-specific measure, modified
from a measure used in prior depression studies, is shown in
Appendix
2 and may be considered for symptoms research.
-
Functional status. Related terms include
disability and health-related quality of life (HRQoL). The SF-36
and its shorter version, the SF-12, are among the most widely
used generic HRQoL measures. Another internationally validated
measure, also 36 items, is the World Health Organization Disability
Assessment Schedule (WHO DAS). An even briefer assessment of
disability and function is shown in Appendix
2, consisting of several global items from the Sheehan disability
scale, plus a global rating of quality of life and of health
utilities. Also, the 5-item EuroQol is a brief, widely-used
functional status measure that has been translated into multiple
languages. Finally, some of the multi-dimensional symptom scales
have questions about symptom-specific disability and function.
-
Provider satisfaction. It may seem
ironic to measure (or be concerned about) the satisfaction of
physicians or other health care providers in the context of
patient care. However, research has established that physicians
consider one-sixth of outpatient encounters to be difficult,
and one of the strongest correlates of difficult (or frustrating)
encounters are visits related to physical symptoms (Hahn,
2001). Thus, there may be research studies or health system
interventions targeting the care of patients with symptoms for
which a secondary outcome would be provider satisfaction. A
well-validated measure is the 10-item Difficult Doctor-Patient
Relationship Questionnaire, which has been used in various symptoms
studies (Hahn
et al.,1996; Jackson
and Kroenke,1999).
-
Health care costs. Symptoms are responsible
for a large proportion of health care visits and also are a
predominant reason the subset of high utilizing patients seek
health care. Thus, assessing health care utilization and costs
may be an important variable in symptoms research.
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